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Last update: 2011-05-01

2011 FightSMA Conference Information and Hill-Rom Interview (Fighting Back Podcast #24)

2011-05-01 :: Steve Mullen / FightSMA

fighting-back-24-110426.mp3 Welcome back to the only podcast dedicated to information about SMA and the stories of people fighting it and other serious or incurable diseases.  If you haven’t listened to this podcast before, you can subscribe via the Fighting Back Podcast RSS feed, or at the Fighting Back iTunes Store.  Listen to this episode by [...]…

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Dr. Brian Kaspar Discusses Gene Transfer in SMA

2010-08-05

Following the publication of his team’s gene therapy work with AAV-9 in spinal muscular atrophy (SMA) mouse models (Foust et al., Nature Biotechnology), Dr. Brian Kaspar participated in Nationwide Children’s Hospital’s monthly podcast about neuromuscular research. In this podcast, Dr. Kaspar spoke about a number of topics including: What is spinal muscular atrophy (SMA) The [...]…

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Fighting Back Podcast #23 – Hill-Rom

2010-04-23 :: Steve Mullen / FightSMA

fighting-back-23-100428.mp3 In this episode of Fighting Back Podcast, we talk with Chad Boerst from Hill-Rom.  Hill-Rom is a sponsor of the 2010 FightSMA Annual Conference, in Washington D.C.  The company was also a sponsor of the 2009 conference. Chad tells us about the products that Hill-Rom manufactures and sells that help SMA patients and families, [...]…

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Fighting Back Podcast #22 – This Side Up (Kyra Oliver)

2009-09-24 :: Steve Mullen / FightSMA

fighting-back-22-092409.mp3 A Fighter Mom is someone who has been touched by tragedy, and gains the will to fight to help ensure no one else has to deal with the same pain.  In this episode of Fighting Back Podcast, we meet someone who fits that description to a “T”. Kyra Oliver’s four-month-old son, Hayes, died in [...]…

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Fighting Back Podcast #21 – A Room Full of Fighter Moms (Martha Slay)

2009-08-20 :: Steve Mullen / FightSMA

fighting-back-21-090820.mp3 People frequently ask, “What is a Fighter Mom?”  Fight SMA president and Fighter Mom founder Martha Slay recently spoke with an entire room full of them, at the Rhett Syndrome Foundation’s 25th Annual Conference in Northern Virginia.  She discussed the values of Fighter Moms and how to be a more effective one.  In this [...]…

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Fighting Back Podcast #20 – Understanding Genetic Testing (Dr. Joann Bodurtha)

2009-07-08 :: Steve Mullen / FightSMA

fighting-back-20-090708.mp3 Genetic testing can be an incredible tool, but it can be difficult to understand how it works and what to expect.  We’re honored to have as our guest on the latest episode of Fighting Back Podcast, Dr. Joann Bodurtha, a geneticist from Virginia Commonwealth University Medical Center in Richmond, Virginia.  She explains how these [...]…

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Fighting Back Podcast #19 – 2009 State of the Disease for SMA (Part 2)

2009-02-11 :: Steve Mullen / FightSMA

fighting-back-19-090201.mp3 This is part 2 of our 2009 State of the Disease Podcast for Spinal Muscular Atrophy, where we look back at the scientific advances in SMA research in 2008 and look forward to what might come in 2009.  This two-part series features the co-chairs of FightSMA’s scientific committee, Alex MacKenzie, M.D. (Director of the [...]…

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Fighting Back Podcast #18 – 2009 State of the Disease for SMA (Part 1)

2009-02-06 :: Steve Mullen / FightSMA

fighting-back-18-090206.mp3 2008 was an important year in spinal muscular atrophy research, as scientists and doctors continued their work to find a treatment or cure for the neuromuscular disease.  This episode of Fighting Back Podcast is the first part of our yearly “look back and look forward”.  This time we look back at 2008 and look [...]…

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Fighting Back Podcast #17 – Fighter Mom Friday Audio (Steve Eichenauer)

2008-09-04 :: Steve Mullen / FightSMA

fighting-back-17-080904.mp3 This is the last in a series of four Fighting Back Podcast episodes that feature audio from the Fighter Mom Friday event, held on May 9, 2008 in New York City.  The workshop was designed to educate, inform, and inspire attendees fighting against diseases or conditions affecting their children. The day-long event featured a [...]…

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Fighting Back Podcast #16 – Fighter Mom Friday Audio (Dr. Alex MacKenzie)

2008-06-26 :: Steve Mullen / FightSMA

fighting-back-16-080626.mp3 This is the third in a series of Fighting Back Podcast episodes featuring audio from the Fighter Mom Friday event, held on May 9, 2008 in New York City.  The workshop was designed to educate, inform, and inspire attendees fighting against diseases or conditions affecting their children. The day-long event featured a number of [...]…

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Fighting Back Podcast by Fight SMA and FighterMom

Information for and Inspirational stories about people and families fighting serious or incurable diseases. This podcast is produced by Steve Mullen for Fight SMA (www.fightsma.org) and its program, FighterMom (www.fightsma.org/fightermom). Fight SMA is an international nonprofit organization working to accelerate a treatment or cure for spinal muscular atrophy (SMA). FighterMom provides advice, support, and education for mothers who have become disease advocates fighting against any disease or disorder affecting their children.

Fighting Back Podcast by Fight SMA and FighterMom


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